Tag Archives: dna

Privacy Tip #210 – HHS Office of Inspector General Issues Fraud Alert for Genetic Testing Scam Targeting Seniors

Everyone knows how I feel about those home genetic testing kits—most people don’t understand that when they send their DNA to a private company that it is not protected by HIPAA or any other law, and the company can legally use and disclose it, including selling it to other companies. Understand what companies are doing … Continue Reading

DNA Information of Thousands of Individuals Exposed Online for Years

It is being reported that Vitagene, a company that provides DNA testing to provide customers with specific wellness plans through personalized diet and exercise plans based on their biological traits, left more than 3,000 user files publicly accessible on Amazon Web Services servers that were not configured properly. The information that was involved included customers’ … Continue Reading

Has Investigative Genealogy Become the Wild, Wild West?

DNA technology has assisted law enforcement in identifying criminals for decades.  The U.S. National DNA Database System stores the DNA data of millions of criminals, and allows law enforcement officers around the country to compare and match forensic evidence in this central repository.  This closed universe of DNA only contains data from individuals arrested or convicted of a … Continue Reading

Privacy Tip #176 – Sharing Your Genetic Information With Private Companies

I had very interesting conversations with both of my classes in the last week over the sharing of genetic information in the context of learning about the Genetic Information Non-Discrimination Act (GINA). GINA generally prohibits employers and insurers from using genetic information to discriminate in employment or insurance underwriting. People mistaken believe that GINA protects … Continue Reading
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